DR ELLIE MACKIN ROBERTS
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Telling the truth?

18/8/2017

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I have been thinking recently about how much of myself I should be giving away in job and grant applications. This has come because I am working on an ERC Starting Grant application. I have no idea if I am good enough for one, but this is the first year I'm eligible and the last year that the UK might be able to apply. And honestly, I think the experience of writing a huge grant proposal will be good for me. But, the thing is... I don't think I've quite done as much as I might have done regarding ​being excellent.

​​I finished my PhD as a single parent, in the middle of a serious manic episode. I struggled to get my bipolar and anxiety under control. I've struggled with the side effects of medication. In the midst of that I published an article in a pretty good journal. I got two book contracts. I've submitted another article. I am by no means prolific, but... that's not too bad.

Here's why I struggle with this.

​1. In my life, this is normal. This is my​ normal. I have done everything I could do, within reason. For instance, I would have loved to go to Fondation Hardt, like many of my PhD cohort (and my now-husband) did. But, I had a kid that relied on me to be in London. How much of that should I get a pass for? I did other things, that were closer to home. Like chairing a year-long seminar series in London. At home. 

​2. I don't want to make a 'benchmark' for good, or decent, or excellent for people who have stuff going on. 'Oh, well X also has acute anxiety and has produced two more articles than Y', 'Z also had a child and finished their PhD 3 months before X'. I hope you see where I am going with this. ​But then, by not declaring, aren't we saying that the benchmark for everyone is the same? When it shouldn't necessarily be. X might have a parent who suddenly needs significant care, and it falls to X to take that on. How do we compare near 24hr care of a parent for 6 months (for argument sake), to the small-bits-a-day of self-care required of someone who has a schizoaffective disorder? Or myalgic encephalomyelitis (also called chronic fatigue syndrome)? We can't have two benchmarks (i.e. one for 'normal' people and one for (what?) all other people). We can't just have one benchmark, because some people have overcome significant things to achieve. I obviously don't have an answer.

​3. As much as I would like to think that saying all this in a job or grant application would be taken in the spirit it is meant (i.e. here's what I've done, and here is the context of my life) it might​ be taken as a mark against me ('this person might have another serious manic episode' 'this person might have another child' 'this person might develop serious side effects and require sick leave'). I would never have a way of knowing, but it's a scary proposition.

​The Pros List (I think the cons are obvious)
​Anything I can do to destigmatize mental illness is a good thing. Calling my mental illness a chronic invisible illness demonstrates (I hope) that I treat it as a serious, but manageable (and managed) illness that would be like managing any other non-life-threatening illness. It also says (again, I hope) that I am not ashamed of having bipolar.

​So. I don't have an answer. I suppose I will probably end up writing two versions of the statement and see which one passes though the research office. 

​Future job applications - again, totally undecided.

​What an unsatisfying end. 

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World Bipolar Day

30/3/2017

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I have Type 1 Bipolar. I ‘outed’ myself last October on World Mental Health Day. Since then, I have spoken candidly about various aspects of having bipolar and a panic disorder, but these have usually been fleeting bursts on Twitter. Until now I have not committed anything to the permanence of this site, partly because being open in a post that can be called and recalled by anyone, at any time, is scary and worrying. I am on the market for a permanent academic job, and I am obviously concerned that this will negatively affect that endeavour.
 
I am worried about the stigma of having a chronic mental illness. Will I be able to be ‘open’ about my diagnosis until the stigma is gone? No. Will the stigma be lifted unless people, like me, are ‘open’ about their diagnoses? No. It’s a vicious cycle. To break it, I have to step forward and be open. This is the small thing I can do to help.
 
Living with bipolar isn’t easy. Twice a day I take my medications, I will take these for the rest of my life. Perhaps not these exact ones, because that’s the thing about medication for chronic illnesses (of all kinds, not just mental illness) – sometimes they stop working the way you want them to work. Everything I do is a balancing act. If I do x, I will feel like a. That means that I might not be able to do y later on. It’s Spoon Theory. Do I need to go to the supermarket with my 5-year-old? That will take four spoons. If I can go on my own, it will be two. Do I have to take the 6:55am train to Leicester to make a meeting with a student? That will be one additional spoon than taking the 8:56. If Kiddo doesn’t sleep well tonight I will need an extra five spoons, so do I want to keep three in reserve – that means it will only cost two of tomorrow’s spoons. You get the point.
 
Even though I take meds, I still experience the fluctuations of my mood disorder. They obviously aren’t as pronounced as if I wasn’t taking medication. I have learned to match my work to these – when I am ‘up’ I produce new research and do as much teaching preparation as I can. When I am ‘down’ I edit – I am brutal and mean, and the comments I leave on my own work are sometimes heartbreaking. When I am ‘even’, I submit work. If I can help it I never push ‘submit’ while I am up or down, because even though these are very mild versions of mania and depression I am still not as measured as I would like to be when I do the final checks of a manuscript or abstract.
 
This is not a glorification of bipolar. Yes, I did write tens of thousands of words in a manic frenzy during my PhD, but I also completely neglected my own health and let my marriage crumble around me. I have – like anyone who faces a chronic illness – learned how to work with myself, rather than fighting against myself.
 
It doesn’t always work, and I am particularly bad at preventative ‘self-care’. My ability to recognise when I need to break out of my bubble is dulled and broken. Fighting this is something I will be doing forever.
 
I am not bipolar. I have bipolar. That’s an important distinction. And over the last six months, I have forced myself to come to terms with having a lifelong invisible illness, a disability. It has made it easier to be open. But it will always be an uphill battle, and I will always be fighting a war against myself – I just hope for more, longer, periods of peace.
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Self-Portraiture as Self-Care

13/12/2016

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I’ve recently started taking self-portraits as a method of self-care. It’s a way to keep hold of my corporeality – although that sounds very dramatic, it’s an important thing to do for a person who spends most of their time living in their own head. A lot has been written about selfie culture: see the tag Selfie Culture on HuffPo, and (particularly) Laura Bates's (of Everyday Sexism) Guardian article about selfie-taking as (teenage) feminism and image reclamation. I don’t agree that selfies and self-portraits are different things – they are both about holding onto one’s own image and cementing it in a place and time. Sometimes that place and time is frivolous, sometimes it’s serious. Both are okay and both should be encouraged.

For me, the idea of placing myself down, looking in at myself from the outside, seeing one or many of my selves together, is a form of self-knowledge. From Delphic Maxim to Self Help tool in one easy step. Though, I admit, I find it uncomfortable to see my own eyes, grey and hard, staring directly into my face. It forces me to confront myself - but in that confrontation to also understand.
 
I didn’t think this had anything to do with my research until recently. In my work I try and find people. Real, individual people. And in taking self-portraits I am really doing the same thing. Except the ‘real people’ is me, it’s just that the discovery is ‘self-discovery’. 
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